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'Locked-in syndrome: paralysed from head to toe, the patient, his mind intact, is imprisoned inside his own body, unable to speak or move. In my case, blinking my left eyelid is my only means of communication.' In December 1995, Jean-Dominique Bauby, editor-in-chief of French 'Elle' and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call 'locked-in syndrome'. Using his only functioning muscle - his left eyelid - he began dictating this remarkable story, painstakingly spelling it out letter by letter. His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit. The acclaimed 2007 film adaptation, directed by Julian Schnabel, won Best Director at Cannes and was nominated for the Palme d'Or.
- Sales Rank: #2671551 in Books
- Brand: Brand: HarperCollins Publishers
- Published on: 2008-01-07
- Original language: English
- Number of items: 1
- Dimensions: 7.76" h x .43" w x 5.12" l, .25 pounds
- Binding: Paperback
- 144 pages
- Used Book in Good Condition
Amazon.com Review
We've all got our idiosyncrasies when it comes to writing--a special chair we have to sit in, a certain kind of yellow paper we absolutely must use. To create this tremendously affecting memoir, Jean-Dominique Bauby used the only tool available to him--his left eye--with which he blinked out its short chapters, letter by letter. Two years ago, Bauby, then the 43-year-old editor-in-chief of Elle France, suffered a rare stroke to the brain stem; only his left eye and brain escaped damage. Rather than accept his "locked in" situation as a kind of death, Bauby ignited a fire of the imagination under himself and lived his last days--he died two days after the French publication of this slim volume--spiritually unfettered. In these pages Bauby journeys to exotic places he has and has not been, serving himself delectable gourmet meals along the way (surprise: everything's ripe and nothing burns). In the simplest of terms he describes how it feels to see reflected in a window "the head of a man who seemed to have emerged from a vat of formaldehyde."
From Library Journal
Two days after this remarkable book was published in France to great acclaim, its author died of heart failure. What caused such a stir was the method Bauby used to write it. For in December 1995, the 44-year-old former editor-in-chief of the French Elle magazine had suffered a severe stroke that left his body paralyzed but his mind intact, a condition known as "locked-in syndrome." Able to communicate only by blinking his left eyelid, he dictated this book letter by letter to an assistant who recited to him a special alphabet. The result is a marvelous, compelling account of Bauby's life as a "vegetable," full of humor and devoid of self-pity. Although he was trapped in the diving bell of his body, Bauby's imagination "takes flight like a butterflyy....You can wander off in space or in time, set out for Tierra del Fuego or for King Midas's court." His celebration of life against all odds is highly recommended. [Julia Tavalro, who suffers from the same condition, has also written an excellent account, Look Up for Yes, LJ 2/1/97.?Ed.]?Wilda Williams, "Library Journal.
-?Wilda Williams, "Library Journal"
Copyright 1997 Reed Business Information, Inc.
From The New England Journal of Medicine
The locked-in syndrome is a complication of a cerebrovascular accident in the base of the pons. The patient is alert and fully conscious but quadriplegic, with lower-cranial-nerve palsies. Only vertical movements of the eyes and blinking are possible. At the age of 43, Jean-Dominique Bauby, who was editor of Elle and a robust bon vivant, suffered such a stroke. After 20 days in a deep coma, he gradually regained consciousness. His right eyelid was sutured shut to prevent corneal ulcerations, he was fed through a gastric tube, he drooled uncontrollably, he breathed through a tracheostomy tube, his urine drained from a catheter, and his bottom was wiped by others. He felt as if he were trapped in a diving bell, but his mind was free as a butterfly. Bauby wrote The Diving Bell and the Butterfly solely by blinking his left eye in response to the reading of an alphabet, arranged according to the frequency with which each letter occurs in French (E, S, A, R, I,... W). A friend read off the letters, pausing when Bauby blinked. Letters laboriously became words, and then sentences.
I brought this book along on an airplane that took me to a meeting in a distant city. Reading it made me hope that air traffic would delay our arrival. It is a remarkable tribute to the human spirit -- a book that will inspire any physician, medical student, nurse, or patient. There is no self-pity and no thought of physician-assisted suicide. The tone is as ironic and dry as perhaps only the French can be. In a seaside hospital, Bauby, imprisoned in his paralyzed body, recounts his days. He notes that a stroke such as his is usually fatal, but "improved resuscitation techniques have prolonged and refined the agony."
Now, instead of directing one of France's leading fashion magazines, he is strapped in a wheelchair, completely dependent on others for the simplest demands of life: shut the door, roll me over, fluff up a pillow. "A domestic event as commonplace as washing can trigger the most varied emotions." And then there was the boor who, with a conclusive "Good night," turned off the Bordeaux-Munich soccer game at halftime and left. Bauby's attendants dressed him not in hospital garb, but in his own clothes ("Good for the morale," according to the neurologist). Bauby comments, "If I must drool, I may as well drool on cashmere." He is, as he says, a "voiceless parrot" who has made his nest in a dead-end corridor of the neurology department. When the stretcher-bearer who returns him to his room leaves with a hearty "Bon appetit!" the effect on Bauby is the same as "saying `Merry Christmas' on August 15."
Fed by two or three bags of brownish fluid instilled into a gastric tube, Bauby recalls his culinary skills -- boeuf en gelee and homemade sausage -- and melon, red fruit, and oysters, but above all, sausage. He imagines spending a day with his children, lying in bed beside his lover, and flying to Hong Kong, and he dreams that Radovan Karadzic, leader of the Bosnian Serbs, is performing a tracheotomy on him. In the Cafe de Flore, noxious gossip from the lower depths of Parisian snobbery poisons the air: "Did you know that Bauby is now a total vegetable?" Bauby, "to prove that my IQ was still higher than a turnip's," begins a remarkable correspondence, not by pen but by blinks. "The arrival of the mail [had] the character of a hushed and holy ceremony." Every sentence of this arduously written book is a jewel burnished by a rare disease and still rarer intelligence.
Bauby died only two days after the publication of his book in France.
Reviewed by Robert S. Schwartz, M.D.
Copyright � 1998 Massachusetts Medical Society. All rights reserved. The New England Journal of Medicine is a registered trademark of the MMS.
Most helpful customer reviews
1 of 1 people found the following review helpful.
A must read.
By Jannetta
A testament of our will to find meaning in life, regardless of our circumstances. It will make you long for life, and then remind you how lucky you are to still enjoy yours. A courageous look at self when that is all that is left. Read it and be reminded how blessed we are that fate dealt us a gentler hand. At least, hopefully, so far. Beautiful memoir.
0 of 0 people found the following review helpful.
useless limbs--a feeling that can almost be disturbing
By Danielle Babiarz
"A testament to the human spirit" is a hackneyed, cliched, descriptor. In this case, however, apt in that the author of the book was quite literally a human spirit, having lost all motor ability (save for blinking motion of the left eye) due to a cerebrovascular accident affecting the brainstem. Ironically, at least some sensory input stayed intact allowing him to feel pain and discomfort. The author is Jean-Dominique Bauby, one-time editor of French "Elle", dictated laboriously with the use of the above-mentioned left eye and an alphabet board.
The title refers to the dichotomy of body and mind. The content of the book includes memories and escapist fantasies (the "butterfly") and descriptions of a life locked inside one's own body (diving bell) in language that evokes such vivid imagery it seems that the reader is inside Jen-Do's head, sharing his leaden, useless limbs--a feeling that can almost be disturbing. In spite of the gravity of his situation, he conveys humor ("if I must drool, I may as well drool on cashmere"), dignity and above all, gratitude. With empathy and affection, he portrays fellow patients (little packets of life turned in on themselves), friends, family, hospital staff, giving particular reverence to the speech therapist who initiates the alphabet board system. The book almost has a stream-of-consciousness feel in that it is no way linear or chronological, but somehow every part fits into a coherent whole.
At 132 easily readable pages, this book is a small time commitment with innumerable insights to the reader. Even if you've seen the Julian Schnabel movie, read the book.
1 of 1 people found the following review helpful.
The movie is nearly as good as the book
By S. R. Osterfeld
A very quick read. I read it in two days. Then, a few weeks later, I read it again. A very inspiring story. Completely engrossing. Considering Bauby’s condition, there is a surprising amount of humor in it. And, although you cannot help but feel sympathy towards him, this is not a “pity party.” It is an appreciation of life. The movie is nearly as good as the book, and is very faithful to the book. I highly recommend both.
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